My primary question relates to sports. I got Edwards magna perimount 25mm bovine AV and Valsava graft for aortic root replacement. Im 33 and I do jiu-jitsu. I too would be interested in talking off-line about what I have experienced or finding docs who have studied more extensively at fine-tuning high performance engines. I have severe aortic stenosis with no signs or symptoms. 100 Black-Owned . And what would moderate weight lifting be defined as? I currently run 40 -50km a week and do two 2 hour intensive yoga sessions a week. However, there are few reports about the safety and efficacy of TAVI in type 0 BAV. John Ritter - Actor - passed away due to undiagnosed CHD at age 55. I recently also did a 24hr EKG (holter) which was fine. All they said is dont really do weight where you can feel the strain in your neck ?!? What advise can you give to someone in my position? I inderstand that my resistance training will likely be severely curtailed from this point forward, but severe restrictions on my endurance training will be a very difficult pill to swallow. Randyyour situation has many similarities to mine; I would be very interested in sharing experiences. There is a risk of sudden death in individuals with BAV, probably related most to aortic stenosis or aortic dissection/rupture. . Arnold Schwarzenegger Was Born with a Valve Defect - AmoMama A 2nd opinion might help by bringing another set of eyes and ears to your problem. As I restart my resistance (weight training) program what should be my upper limit weights? 3. which seems to suggest that he has returned successfully to the sport. Your situation is complicated.and it wont be possible to give a complete answer here without additional information. "Weve gotten a lot closer and weve learned each other on a whole different, deeper level, she told PEOPLE in 2015. The cardiologist doesnt do the surgery we have to go to another province to have surgery. I would defer to Dr. Dietz since youve already contacted him. I wish you both all the best. Since he had to stop playing.. depression has set in. Hi Dr. Creswell. Thank you! Thanks. I had a cardio version to correct the AFIB. 1. What Is Bicuspid Aortic Valve Disease? In fact, in some people they can go undiagnosed for years. A faulty aortic valve isn't something you want to have considering that it helps blood flow out of the heart and through the rest of the body. It was reported on April 5 that the 75-year-old Jagger underwent successful transcatheter aortic valve replacement (TAVR) at an undisclosed hospital in New . The doctors tell me I will be able to run again at a level near to what Im accustomed to (50-60 miles per week) but are reluctant at this point to specifically tell me the limitations and restrictions Im to endure. As I train triathlon I check my heart every year and there is small back flow (the same last 5 years). Heart disease and stroke are the number one killers of women, Streisand, 74, told PEOPLE about why she helped found the organization. With aortic root 39mm. It seems to be a very interesting option for those who have aortic dilatation due to Marfan or BAV (which is my case). His whirlwind romance with Katherine Schwarzenegger has resulted in a rather large ring on her finger. Normally, your aortic valve has three cusps that regulate blood flow from your heart to your aorta. I was just curious if there any way to know if my valve is affecting my times at all? In some cases, bicuspid aortic valve causes another condition called aortic valve stenosis. There were some procedural differences between the bicuspid and tricuspid groups. From afar, I dont have much to add. I wouldnt be happy just running I want to be the best that I can be at it. Arnold Schwarzenegger Test Drives New Aortic Valve on Cleveland You would never know meeting these celebrities that they had a CHD. We all appreciate it. This was 7 months ago. Thanks, There are four valves of the heart, which are divided into two categories: Atrioventricular valves: The tricuspid valve and mitral (bicuspid) valve. I am a 23 year old male, have BAV with mild AR. I have: This is the only measurement that has gone down . To save nice heart the best would be doing nothing (! Before that, I had never seen a cardiologist ever. To list down the names of celebrities including entertainers, musicians, politicians, TV personalities, sports figures, etc. Im not looking forward competitions nor marathons. Youll need to rely on your doctors for advice about your condition. I used to do HIIT and moderate to heavy weight 5 days a week before my physical complications. We have got two completely different opinions from our cardiologists: In fact, one young man died 5 years after operation (from other non related causes) and the study on his aorta tissue revealed that the device helped it to heal, presenting a healthy histology. Regarding activity restrictions, you would do best to rely on the advice of your sons doctor(s) who will be in the best position to know the relevant specifics. Only restrictions are no weights greater than 100 pounds or heavy contact sports. Will I need meds? Your web site and the links have much good information. The recovery from heart surgery can be hard to predict for any given patient, but we know that young otherwise healthy patients tend to do well. I would very much appreciate your opinion weather he can continue his regular football training or should stop it. However, some people are born with an aortic valve with only two leaflets, known as a bicuspid aortic valve. Get your act together, Columbus! The echo in Jan asc aorta Diam 4.2 cm z-score 6.4. I was training for a marathon when I was 62 years old and diagnosed with BAV with severe regurgitation. I have also been advised that running intervals at over 80% max heart rate would not be sensible. My daughter (16 y/o) has a St Jude mechanical mitral valve (adult size valve even though she has had it for 7 years). I think hes amazed by what I have described for my workouts of 65+ mile rides several times a week. Hey was born with BAV and moderate regurgitation and stenosis, and dilatation of his ascending aorta. Thank you for your expert opinion. My father has struggled with heart disease since he was 50, and I lost him [in 2008].. Ive been affected by heart disease practically my whole life, she said. Regarding the PEARS, the main concern is about the possibility that the aorta dissects even in a controlled measure (lets say 4.5cm). Celebrities with congenital heart disease Sounds like youre on the right track with your upcoming visit with a specialist. Since then I completed several 10k races and one half-marathon. The worse the narrowing, the greater will be the difference in blood pressure between the arms and the legs. Mayo Clinic Q and A: Treatment and management of bicuspid aortic valve Youre right, though. Aortic valve stenosis: Your aortic valve narrows, reducing blood flow through it. He/she can talk with you about the generalities of operation in your circumstance. Hi . Questions about Bicuspid Aortic Valve!! Aortic valve diseases in pregnancy - European Society Of Cardiology I got checked out by my GP who detected a murmur then had all the other heart related tests and was diagnosed with BAV with stenosis and regurgitation. Ive been told by my cardiologist that they think I should probably avoid competitive rowing and weight lifting. Early after operation, and for perhaps the first month, we typically limit activities that place stress on the shoulders and sternum. To revist this article, visit My Profile, then View saved stories. Enlargement of the left ventricle can be an indication that the heart suffers from the aortic regurgitation, even if the regurgitation doesnt produce symptoms like shortness of breath. I have normal aortic size, mildly dilated aortic sinus (39 cm), and trace aortic regurg. I was born with a BAV and but I didnt notice performance issues until the Summer of 2016, so I brought myself to the doctor. Bicuspid Aortic Disease | Cedars-Sinai If echo shows a normal size, thats probably okay. The value of CT/MRI comes when a millimeter or two makes a difference in treatment, restrictions, surgery, etc. Also twice a week I try to do 40-minute workouts like planks, pushups and so on (with my bodyweight). Ordinarily, athlete patients with mild degrees of valve regurgitation can continue to participate in their sports. My questions are: Eventually I will need valve replacement. I have wife and two small boys, I wanna live to see my grandchildren. Over the past 3 years, my endurance has declined significantly, and now I cannot run a lap on the treadmill without some walking; however, my numbers from the semi-annual utrasound have not changed much. Options for operation Arnold Schwarzenegger (The Governator) - Heart Valve Replacement. Also he told me I can lift weights and do other activities. I cant lift over 40lbs and I cant continue my work as a tradesman as it requires lifting over the 40lb mark. I have bav with mild dilation of aorta 39mm. His doctor did not restrict him, but suggested that it may be time to give up the high-level play due to its high intensity training aspect (based on the Thanks for sharing your sons story. My cardiologist Said to not lift heavy weights. Sadly, most school/sports physical exam programs dont include echocardiogram.and the absence of a heart murmur in a child wouldnt preclude the diagnosis. Is it possible that the valve will get loose? Patients whove had aortic valve replacement and/or replacement of the aorta will require life-long monitoring by their doctor, with periodic echocardiogram and/or chest CT scanning. Anyway, I will continue with running as much as I can, and now I have an excuse for my lousy performance. I had my AVR almost one year ago. Im 37 years old male, live in Croatia, 191 cm, 94 kg, very athletic, practicing various sports my whole lifetime. I asked her about surgery. Perhaps the best course of action might be to start off very conservative with exercise, as you are doing, with periodic assessment of the aortic valve and aorta with echo and CT. You might then gradually increase the activity and monitor for any bad signs with the periodic echos and CTs. Search Hospitals, Join 375,000+ Patientsat Our Facebook Page Click here, HeartValveSurgery.com 2785 Pacific Coast Hwy, #517 Torrance, CA 90505 Phone: (888) 725-4311, 2023 HeartValveSurgery.com. Be specific. Dr Creswell, He left it pretty vague. Hey is a frustrated guy. Learn more about Baldwin Publishing Inc.editorial policy,privacy policy, ADA compliance andsponsorship policy. Aorta diameter (34 mm|34 mm); Bicuspid Aortic Valve Symptoms and Treatment | Baptist Health Sometimes my cardiologist says there is minimal change and he thinks my aorta had slightly enlarged by 1-2mm. We briefly talked about the Ross procedure vs mechanical valve replacement. Willie Moses I dont think theres a way to predict the future in this circumstance. For some reason I did not receive a notification of your reply, so apologies that I havent thanked you before. The most common type was type 1 (1 raphe with the raphe positioned between the right and left coronary sinuses (75%), while the second most common type was also type 1 . In 2017, there were 3,046 deaths due to rheumatic valvular heart disease and 24,811 deaths due to non-rheumatic valvular heart disease in the United States. However, randomized, controlled trials have excluded bicuspid aortic valve (BAV), which is the most frequent congenital heart disease occurring in 1% to 2% of the total population and representing at least 25% of patients 80 years of age or older referred for aortic valve replacement. The surgery was a full success, and the valve is closing really well now. Bicuspid Aortic Valve - Nationwide Children's Hospital That said, guidelines from the 36th Bethesda Conference suggest that BAV, without enlargement of the nearby aorta or problems with the aortic valve, shouldnt preclude any sports activities.including weight lifting. I do not have Julys echo results yet. Consult your doctor to see if there are any restrictions that would be specific to your case. Males are about twice as . Given my age and activity level, do you think it would be beneficial, or even prudent, to explore a valve repair surgery as you described above? My average weekly training plan includes 50k of running (5 days) with 80% done on pulse below 154-152 and only 20% done at pulse about 175-179 bpm. If you wont we can share experiences about healing and progress, its pretty much same situation. Thanks for the enlightening article. Although the vast majority in each group (97%) underwent TAVI via the transfemoral approach, bicuspid patients were less likely to receive conscious sedation (57% vs 62%) and more likely to be treated with the largest 29-mm valve size . Barbara Walters Prepares for Heart Surgery - ABC News Theres no reason to not be CPR certified.. While I do not work out regularly, my job as a construction worker is somewhat strenuous. Thoughts. I just thought it was muscle strain., My body cleared the blockage itself, said the game show host, who credited the aspirin he was taking for what he thought was simple muscle pain. Sheer brutality and trauma caused Myasthenia Gravis. Whether 130 beats per minute is a good cut-off truly isnt known. Questions currently remain about how long such repairs will last and whether patients might require re-operation at some point in the future. There was only a 0.2 cm increase in the previous 7 years (so from age 21 to 28). Bicuspid aortic valve (aka BAV) is a form of heart disease in which two of the leaflets of the aortic valve fuse during development in the womb resulting in a two-leaflet (bicuspid) valve instead of the normal three-leaflet (tricuspid) valve. I cant think like a nurse where hey is concerned. Transcatheter Aortic Valve Replacement in Bicuspid Aortic Valve Aortic stenosis and bicuspid aortic valve (BAV) will need careful consideration by your physicians who know all of the pertinent details. Health eCooking is a registered trademark of Baldwin Publishing, Inc. Cook eKitchen is a designated trademark of Baldwin Publishing, Inc. Any duplication or distribution of the information contained herein without the express approval of Baldwin Publishing, Inc. is strictly prohibited. Related posts: Replacement? The lines are the edges of the valve leaflets that open and close to let blood through. I dont train a lot, like 2k bike, 500k run and 100k swim yearly and few competitions sprints and one half IM in a year (32 years old). His cardiologist said, i am sure he can play a full game with new issues but I have to go with new guidelines and indirectly left it up to me to make the decision which moved him to mild /moderate and put right at the Borderline. And, if so, how did things go? Likewise, if I did a 60kg bench press I could easier than say an 18 year old girl started at the gym tried that, they would have to strain beyond belief. I am 46 years old today, 22x marathoner, 4x Ultra (50 miles) and 5x natural fitness competitor. I agree that its somewhat surprising that more detailed information isnt available. Advances in treatment have allowed many babies with known congenital heart disease to survive well into adulthoodand many people who have congenital heart disease go on to live long, productive lives. Now I wanted to start again (also due to the 8kg I accumulated in the meanwhile:( ) and I discovered that I can barely run 5K in 30 min and I generally find it very difficult to run. It has allowed me to do the thing I enjoy doing in life. Although bicuspid aortic valve is typically asymp tomatic at fi rst, it is commonly associ-ated with progressive valvulopathy and tho-racic aortic disease. Almost half of BAV subjects develop different degrees of valvular dysfunction during their lifetime. A bicuspid aortic valve (BAV) is an aortic valve that has only two leaflets instead of three. , Bicuspid Aortic Valve Disease, Acquired Valve Disease. I didnt get it.". Could I continue to train and just cut out the blood chokes? Celebrities Who Have Opened Up About Heart Health - Peoplemag This procedure has the particular benefit that no artificial valve (with the disadvantages described above) needs to be used. He just turned 15 he is 511 203 lbs and has a heart of gold. Schwarzenegger was born with a condition known as bicuspid aortic valve, in which the heart's main artery, the aorta, has only two cusps instead of three. March 15, 2023. An article at Endurance Corner about Normann Stadler, A blog post about elite triathletes and heart problems, Aortic stenosis and bicuspid aortic valve (BAV), http://www.athletesheart.org/wp-content/uploads/2013/12/Classification-of-Sports-300217.png, https://academic.oup.com/ejcts/article/50/3/400/2197426, If there is enlargement of the beginning portion of the aorta to greater than 4.0 cm, the individual should have a. Several famous people were reported to have had bicuspid valves: former first Lady Barbara Bush, the comedian Robin Williams, and California Governator Arnold Schwarzenegger. As a result, the valve doesn't function perfectly. I was shocked. Today at my hospital, we do most 1st time aortic valve replacements for aortic stenosis (narrowing) this way and have started using TAVR for patients with previous AVR using tissue valves who need re-replacement. I was only diagnosed with BAV after a routine examination and only because my company has increased in size above a threshold at which all employees are supposed to be subjected to this examination (weird law in Belgium). Use of this site constitutes acceptance of our User Agreement and Privacy Policy and Cookie Statement and Your California Privacy Rights. Hey is almost looking forward to getting it fixed. There are 2 broad categories of heart valve substitutes that can be used to replace the human aortic valve: mechanical valves or bioprosthetic (tissue) valves. Who Qualifies for TAVR. Stress echo revealed hypercontractile with normal response in all LV segments, no LV cavitary dialiation. Ive seen several cardiologist and they are divided in recommendations. May 11, 2010 -- Barbara Walters said on Monday that her upcoming heart surgery, a procedure known as an aortic valve replacement, will hopefully correct a problem of which . I dont believe there is any evidence that would help us know if some forms are safer than others. what would your advice be for training & competing? Bicuspid valves are quite common (1-2 percent of the population). Moreover, there is a myriad of operations that such patients may have had, each with its on set of considerations. Their experiences have been variable, and perhaps for a variety of reasons. My son is 15 and has grown about 4-6 inches in the last year. Thank you for the blog that addresses the athletes point of view, and feelings. Hi, Fantastic website, there is very little actual information on this on the web. The important considerations in athletes with BAV are the degree of regurgitation of the valve and the degree of enlargement of the aorta. Yes, I am aware of the work by Dr. Dietz. His doctor recommended he see a pediatric cardiologist within 1-2 weeks but when I called they cant get him in until April 14th. I hadnt heard about the technique previously. As of Monday, my BP at the echo appointment read 115/66. Very often, follow-up CT scans and echocardiograms are needed every 6-12 months to keep track. Most patients (like me), however, start to experience problems during their 30s, 40s, and 50s. But Ill check it as soon as possible. All severe aortic stenosis patients who are experiencing symptoms should ask for a TAVR evaluation. And of course the problem occurs in everyday, recreational athletes, too. I have been factual with him and told him worst case scenario is he is done with both and have pushed him to see the positives of exploring other things to do. It makes the heart work harder than it should. The flaps are called cusps. Unanswered questions include: Can a bioprosthetic valve wear out more quickly than expected? I had it replaced in 2014 and am now 16. I applaud your efforts to search out information to help you decide on a course of action. The pertinent questions for your cardiologist is whether there is any stenosis (narrowing) or regurgitation (leakage) of the aortic valve and whether the size (diameter) of the nearby aorta is normal. But thats just anecdote. I first wrote about BAV in a short post here at the blog back in 2009. Arnold Schwarzenegger Helped Greta Thunberg Get a Tesla, Where to Watch the Biggest 2023 Awards Contenders. Just double checking. That is to say, I did up until two months ago. This visit we were told it could be a few years before anything needs to be done. Could the changes in my LV be the result of the physiological, not the pathological change? Arnold Schwarzenegger was born with a bicuspid aortic valve, in which the aortic valve has only two leaflets, instead of the typical three. Glad Ive found this website! I am a 55 years old male and have BAV. I will do whatever I can to make sure my mom is comfortable and has whatever she needs, she said. Dwayne E. Russell He loves sports and is wanting to do more and more. I was hoping that if the ultrasound numbers dont change much, the endurance will not decrease significantly. If the valve is smaller than needed, there can be a limit to the ability of the heart to do extra workand that can show up as less speed. Additional types of patients who should ask for a TAVR evaluation include: Bicuspid aortic valve patients who are experiencing symptoms. I made appointment with my cardio, to clear that up, dont worry :). He was forced to stop playing football at 11. Many athletes with bicuspid aortic valve (BAV) may continue to participate in their sports.provided there are no other problems, either with the aortic valve or nearby aorta. The truth is that there is not much scientific information about what happens to such athletes if they do return to endurance sports. Many patients with surgery for BAV, even if it involves aortic root replacement, lead rather normal lives afterwards. Monica Lewinsky: 25 Randoms on the 25th Anniversary of the Bill Clinton Calamity. I had a good childhood being very active in sports and physical activity, I had just had to watch out for contact due to warfarin. The use of a less invasive transcatheter therapy in this . Review of the clinical records of 152 patients aged 20 years and older found to have a bicuspid aortic valve at autopsy revealed aortic stenosis in only 28 percent. However my Sinus of valsalva is dilated between 45-47mm (depending on the machine used). Aortic regurgitation (also called aortic insufficiency), which is a leaky valve. I realise that I will eventually need the valve replaced again and just hope that things go as well next time. Doing nothing wont be great for my heart and wont extend my life neither probably.. Background: Transcatheter aortic valve implantation (TAVI) has achieved satisfactory outcomes in the selected patients with bicuspid aortic valve (BAV), predominately type 1 BAV (~90%). A HR limit of 120 will be tough, I would guess. Consensus guidelines are developed to be broadly applicable, but the guidelines may not be applicable in a given athlete patients circumstance. Weve known the risks and my daughter has done well to avoid scrapping for the ball etc. How long does it take for the homograft to completely heal? Many thanks. A repaired valve may not be as efficient as the native, healthy valve. Young Patient Feeling 'Supercharged' After Bicuspid Aortic Valve Surgery This can be very frustrating to athletes who are used to being more active. I wouldnt put you in the position of giving me your opinion in a public in forum but just let me know if based on the following, you think Im crazy or not. She said not until it gets to 5cm. O'Donnell suffered a heart attack in 2012, and wrote about her experience on her blog. You might keep in mind that trans-catheter aortic valve replacement (TAVR) can be used to re-replace the aortic valve. We expect the current generation tissue valve to last at least 12-15 years before problems. Should I be doing push-ups/pull-ups? Thank you so much for your reply. lessons) My question is if my weight&lack of training or my BAV is the cause of difficulty in running. When there is narrowing (stenosis) or leakage (regurgitation) of the aortic valve, the heart must do extra work. Yes, there are certainly individuals with BAV who go a lifetime without needing valve replacement or aortic surgery. If the conflicting opinions both come from cardiologists, you should ask them to confer with each other and arrive at some sort of consensus. Since Im very active in sports, Id like to have your opinion on it. He wants to be normal. Should I stop jiu-jitsu as it is a mix of anaerobic exercise (which I hear is bad) and aerobic exercise (which I hear is good)? In patients needing valve replacement because of stenosis or regurgitation, the aorta should be repaired or replaced if the aortic diameter exceeds 4.5 cm. (liver cysts noted). Im 52 years old and had surgery 2.5 years ago to repair an ascending aortic aneurysm (5.8 cm) and aortic tissue valve replacement. This award-winning website has helped over 10 million people fight heart valve disease. Many endurance athletes are able to return to their sports after operation for BAV. Left Ventricular Mass (LV mass/BSA 93g/m2| 114 g/m2, Septal thickness 0.93 cm|1.0-1.1 cm, Posterior wall thickness 0.93 cm|1.0 cm). The ST junction and ascending aorta are mildly dilated max 35mm. A different set of. Also suggested taking low dose of beta-blockers although I have been told the effectiveness has not been proven. New guidelines from 2015 are in accord with your doctors recommendations about vigorous exercise as well as periodic imaging to measure the aorta. Im not aware of studies explicitly about athletes after Ross procedure for BAV. Aortic stenosis has been reported to occur in as many as 72 percent of adults with a congenital bicuspid aortic valve, with peak incidence occurring in the 5th and 6th decades of life. This is ridiculous.

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